Síndrome de down: Hacia un Futuro Mejor: Guía para Los Padres

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Elsevier España, 2003 M01 30 - 368 páginas

For over 10 years, parents and professionals have trusted Dr. Pueschel's bestselling book "A Parent's Guide to Down Syndrome" and now, they can get the latest information in his newly updated edition translated into Spanish. Crossing the lifespan, this thorough volume highlights developmental stages and shows recent advances that can improve a child's quality of life. New topics covered include

  • Individuals with Disabilities Education Act (IDEA) 1997
  • innovative services, programs, and support groups
  • the latest prenatal genetic testing methods
  • the impact of play on gross motor development
  • association of Down syndrome with other disorders such as Attention-Deficit/Hyperactivity Disorder and Pervasive Developmental Disorder

Written by leading experts, many of whom are parents of children with Down syndrome themselves, readers will get the advice and insight in this easy-to-read reference."

 

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John Langdon Haydon Down

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Excelente. Como madre de un pequeño con el sindrome me ha ayudado mucho y me ha dado fuerzas para seguir adelante, ha aclarado mis dudas y me da esperanza de q mi preciado hijo podra ser una persona independiente y capaz si le brindo todo lo q necesite para lograrlo sin verlo distinto ni limitado sino como quien es: Juan Antonio. 

Contenido

De padres a padres
1
Breve historia sobre el síndrome de Down
9
Causas del síndrome de Down
17
La clave
19
Diagnóstico prenatal y consejo genético
29
Ha nacido un niño con síndrome de Down
41
Características físicas del niño
51
Problemas médicos y cuestiones de salud
57
Cómo sacar adelante un hijo con síndrome
151
Desarrollo de las habilidades comunicativas
163
Tiempo
187
Educación del niño y del adolescente
203
Adolescencia y transición a la edad adulta
231
El trabajo en la comunidad mediante
265
Experiencias
287
La investigación biomédica y el futuro
297

Expectativas en el desarrollo de tu hijo
77
Alimentación del niño pequeño
91
Estimulación precoz del desarrollo
99
Estimulación del desarrollo de la motricidad
111
Apéndices a la edición española
317
Índice alfabético de materias
336
Derechos de autor

Términos y frases comunes

Pasajes populares

Página 27 - J. Rondal, J. Perera, & L. Nadel (Eds.) , Down syndrome: A review of current knowledge (pp. 124-132). London: Whurr. Hodapp, RM, & Fidler, DJ (1999). Special education and genetics: Connections for the 21st century. Journal of Special Education, 33, 130-137. Hodapp, RM, Ly, TM, Fidler, DJ, & Ricci, LA (2001).
Página 84 - Buckley, S. (1999). Promoting the cognitive development of children with Down syndrome: The practical implications of recent psychological research.
Página 176 - Teaching reading to children with Down syndrome : a guide for parents and teachers.
Página 331 - Nuevas perspectivas en la educación e integración de los niños con síndrome de Down.
Página 220 - L. Nadel & D. Rosenthal (Eds.), Down syndrome: Living and learning in the community (pp.
Página 285 - Unger, D., Parent, W, Gibson, K., Kane-Johnston, K., & KregelJ. (1998). An analysis of the activities of employment specialists in a natural support approach to supported employment. Focus on Autism and Other Developmental Disabilities, 13(1), 27-38.
Página 241 - Down (FCSD) incluye entre sus objetivos mejorar la calidad de vida de las personas con síndrome de Down...

Acerca del autor (2003)


Siegfried M. Pueschel, M.D., Ph.D., J.D., M.P.H., studied medicine in Germany and graduated from the Medical Academy of Dusseldorf in 1960. He then pursued his postgraduate studies at The Children's Hospital in Boston, Massachusetts, and the Montreal Children's Hospital in Quebec, Canada. In 1967, he earned a Master of Public Health degree from the Harvard School of Public Health in Boston, Massachusetts; in 1985, he was awarded a doctoral degree in developmental psychology from the University of Rhode Island in Kingston; and in 1996, he was granted a Doctor of Juris degree from the Southern New England School of Law in North Dartmouth, Massachusetts. From 1967 to 1975, Dr. Pueschel worked at the Developmental Evaluation Clinic of The Children's Hospital in Boston. There he became director of the first Down Syndrome Program and provided leadership to the PKU and Inborn Errors of Metabolism Program. In 1975, Dr. Pueschel was appointed director of the Child Development Center at Rhode Island Hospital in Providence. He continued to pursue his interests in clinical activities, research, and teaching in the fields of developmental disabilities, biochemical genetics, and chromosome abnormalities. Dr. Pueschel is certified by the American Board of Pediatrics and is a Diplomate of the American Board of Medical Genetics. His academic appointments include Lecturer in Pediatrics, Harvard Medical School, and Professor of Pediatrics, Brown University in Providence, Rhode Island.

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